I finally watched that show that I mentioned about NF and I couldn't help but feel SO blessed. Those kids have the disease pretty severely, and Cameron, when compared to them, is SO mild. He does have visible cafe au lait spots and a FEW (literally 4 or 5) neurofibromas that you can see from the outside. Our only concern with him is the 3 plexiform neurofibromas (multiple neurofibromas that grow in a cluster) that are on his spine. But in all honesty, he is doing FABULOUS! We only have to see the specialized doctors once a year and his tumors are NOT growing. I felt like I could be glimpsing something that *could* happen to us, but I felt SO blessed to know that we haven't had to take it that far.
I've had several happy things happen in my life lately, I think it's time for a gratitude post...I need the reminder.
Jake is talking more and more and can even say his name correctly now. He's been trying to say it for a few weeks, starting out as "Day-dub," then "Ja-dub," and now it's "Jacob."
He's also super cute and sweet. He's just learned to make obnoxious noises when he kisses, and thinks it's great fun to make those same noises when he blows kisses. The other night he was blowing kisses while we were eating dinner. He was laughing so hard that he could barely breathe.
The warm weather has been so wonderful. I let the boys play outside yesterday for the first time in I don't KNOW how long without their jackets or coats. It felt so freeing.
I got to have a very fun GNO (Girls' Night Out) last week with my computer and real life friends. I love it when I can just get together with a bunch of ladies, who I know and love, and just giggle until my face hurts.
We had our annual IEP meeting for Cameron this week. Normally I go to the meeting and end up bawling when they talk about Cameron. This week, NOTHING! I was able to stay calm and make my needs known, but I think the thing that made me SO happy was the fact that they were all willing to add the ONE goal I've been advocating for him for YEARS! He now has the goal to read a small book written INTO his plan! On top of that happy news, the district occupational therapist said that Cameron is about ready to graduate from occupational therapy. This kind of threw me for a loop, I was NOT expecting this. His handwriting is getting SO much better, and they're finding it hard to make more age-appropriate goals for the boy. She mentioned a new therapy using a metronome that should help his fine-motor skills, and I am VERY excited.
Life truly is great and I don't have much to complain about! What have you been blessed with lately?